About Us

We are parents, partners, doctors, scientists, and people who have seen the awful impact of brain cancer.

When Lucie Leonard was diagnosed with brain cancer, her mother Robyn was shocked that survival rates for brain cancers had barely shifted in 40 years.

Tragically, Lucie died at 34 after a seven-year battle. Robyn was left with her grief – and with love for Lucie that had nowhere to go.

One day, Robyn started up the little car that had been Lucie’s last, and drove to see Lucie’s neurosurgeon, Professor Michael Besser.

There were many trips after that – to talk to other doctors, research organisations, and the shocked, grieving families who’d also lost someone they love to brain cancer.

Together, they identified where they could make the greatest impact on patient outcomes and came up with a plan to focus on research infrastructure.

That little red car did hundreds of kilometres and was patched up and repainted more than a few times, but Robyn continued in her pursuit to honour Lucie.

Robyn’s love and tireless work helped create a consortium of 89 leading brain cancer doctors and researchers, and a charity called Brain Cancer Australia which gives Australians a way to fund more breakthroughs – faster.

Lucinda 'Lucie' Leonard, 1978 - 2012

We refuse to accept that so many Australians die waiting for brain cancer research to deliver lifesaving care and treatments.

Brain Cancer Australia’s vision is to defeat brain cancer.

Our mission is to give everyone who can help defeat brain cancer what they need to do it.

Enabling more brain cancer research is key.

Brain Cancer Australia – together with everyone in the community who’ll help – is building the brain cancer research infrastructure that’s been missing for far too long.

It will help bring researchers, clinicians and patients together in a way that has never happened before – and resource them to get life-saving treatments and care to Australians with brain cancer.

“I want Lucie’s legacy to be a well-resourced brain cancer research sector in Australia, and a day when patients and families will hear: ‘There’s more we can do for you – this cancer can be defeated’.”

- Robyn Leonard, Founding Director, Brain Cancer Australia

Brain Cancer Australia National Consortium

The Brain Cancer Australia National Consortium is a collaboration of 89 leading clinicians and researchers pioneering infrastructure projects that are focused on accelerating brain cancer research and optimising patient care.

Click here to see the full list of consortium members.

Our three ambitious projects are:

Australian Brain Cancer Registry (ABCR)

to collect the clinical data needed to standardise brain cancer patient care.

Opt Me In (OMI) Platform

to facilitate cost-effective, data-driven clinical trials and enable patients to enrol themselves for research.

Biobanking and Organoid Platform

to standardise procedures, enable linkage of patient data to collected biospecimens, and accelerate innovative genomic brain cancer research.

Brain Cancer Australia National Consortium Steering Committee

The Brain Cancer Australia National Consortium is governed by a Steering Committee, chaired by Professor Lindy Jeffree. The consortium is an unincorporated association, operating under the auspices of the National Health and Medical Research Council Clinical Trials Centre, University of Sydney.

Prof Lindy Jeffree Chair

Neurosurgeon

Director of Neurosurgery Alfred Hospital; Professor, Department of Surgery, Monash University, Melbourne

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Dr Hari Priya Bandi

Neurosurgeon

Canberra Hospital

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Michelle Burke

Industry Advisor

Chair, AusBiotech; Principal and Director, Indigo Advisory

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Prof Bryan Day

Research Scientist

Head, Sid Faithfull Brain Cancer Laboratory, QIMR Berghofer Medical Research Institute, Brisbane

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A/Prof Craig Gedye

Medical Oncologist

Director of Research (Medical Oncology and Haematology), Icon Group, Adelaide

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A/Prof Rosemary Harrup

Medical Oncologist/Hematologist

Head, Medical Oncology/Hematology, Royal Hobart Hospital

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A/Prof Eng-Siew Koh

Radiation Oncologist

Liverpool Hospital, Sydney; Chair, COGNO

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Robyn Leonard

Founding Director Brain Cancer Australia

Consumer Representative, COGNO Management Committee and Australian Brain Cancer Mission Strategic Advisory Group

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Prof Wendy Lipworth

Bioethicist, Health Social Scientist

Department of Philosophy, Macquarie University, Sydney

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Dr Marion Mateos

Paediatric Haematologist/Oncologist

Sydney Children’s Hospital; Clinical Research Fellow, Children’s Cancer Institute Australia, NSW

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Prof Terence O’Brien

Neurologist

Program Director, Alfred Brain, Director of Neurology & Deputy Director of Research, Alfred Hospital, Melbourne

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Dr Rebecca Ormsby

Biobank Coordinator

SA Neurological Tumour Bank, Flinders University, SA

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A/Prof Mark Pinkham

Radiation Oncologist

Gamma Knife Centre of Queensland, Princess Alexandra Hospital and Icon Cancer Centre, Brisbane

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Prof Leonie Quinn

Research Scientist

Head, Cancer Models, The John Curtin School of Medical Research, Australian National University, Canberra

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Prof John Simes

Medical Oncologist

Senior Associate Director, NHMRC Clinical Trials Centre; Medical Oncologist, RPA Hospital; Professor, Clinical Epidemiology, University of Sydney

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Prof Claire Vajdic

Epidemiologist

Head, Cancer Epidemiology Research Unit, Centre for Big Data Research in Health, UNSW

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Brain Cancer Australia Charity Board of Directors

Brain Cancer Australia Charity Ltd is a registered charity with DGR status governed by a Board of Directors who provide strategic leadership and oversight, ensuring the ongoing sustainability and success of the organisation.

The Brain Cancer Australia National Consortium and Brain Cancer Australia Charity work together under a memorandum of understanding.

Prof Michael Besser AM

Chair

Michael is a consultant neurosurgeon at Royal Prince Alfred Hospital (RPA) and the Children’s Hospital Sydney. He is a clinical professor at the University of Sydney and lectures in surgical anatomy. Michael was formerly the Head of the Department of Neurosurgery RPA, Chairman of the Institute of Clinical Neurosciences, Chairman Neurosurgical Board, President Neurosurgical Society of Australasia and Examiner in Neurosurgery RACS. Michael is a triathlon enthusiast and has represented Australia at eight triathlon world championships in standard, long course and ironman events.

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Robyn Leonard OAM

Founding Director

Robyn has been an active brain cancer consumer advocate for the past 18 years. Her diverse background includes qualifications in landscape architecture, horticulture, general nursing and midwifery, as well as many years working in the media as a television producer. Robyn is the founder of BCC and BCBA. She was an inaugural member of the Australian Brain Cancer Mission Strategic Advisory Group, and in 2023 was awarded a Medal of the Order of Australia (OAM) for her service to community health and medical research.

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Prof John Simes AO

Director

Professor Simes is a leading neuro-oncologist, epidemiologist, and clinical trials expert. As Founding Director of the NHMRC Clinical Trials Centre at the University of Sydney, John has been a leader in improving health outcomes through clinical research. A Professor of Clinical Epidemiology in the Faculty of Medicine at the University of Sydney, he received an Order of Australia (AO) in 2020 for his contributions to education and medicine in cancer research and clinical trials. John has been integral to the Brain Cancer Biobanking Australia Consortium since 2015 and serves on its Steering Committee.

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Rene Sugo

Director

Rene, an entrepreneur, co-founded the Australian tech disruptor Symbio, leading it for 15 years until its acquisition by Aussie Broadband in 2024. As CEO, he transformed Symbio into Australia's leading provider of Voice over Internet infrastructure, expanding operations across the Asia Pacific and establishing partnerships with global giants like Google and Microsoft. Before Symbio, Rene worked as an engineer with CSIRO. He has been a keen supporter of the Bike Ride for Brain Cancer for many years, both as a cyclist raising funds and through Symbio’s sponsorship of the event.

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Sharon Bell

Director

Sharon is General Manager HR at CBA with over 20 years senior leadership experience in human resources both within Australia and internationally. She has an MBA from the University of Queensland and is a qualified executive coach. Sharon has a proven track record in business partnering and managing national and global teams to achieve results. She is an active member of the Australian Institute of Company Directors with a keen interest in philanthropic work.

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Robert Bogdanoski

Director

Robert is Principal, Elucidate Accounting & Tax, a boutique tax practice he established in 2004 after many years of tax and accounting experience in a broad range of industries. Robert is a Chartered Accountant, has a Bachelor of Commerce (Accounting) from University of Western Sydney and is a Registered Tax Agent.

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